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Uma das cenas mais bonitas que já vi na minha vida. Uma mãe reencontra o filho na UTI após ele ficar 16 dias de coma. O pequeno Guilherme tem uma doença rara, epidermolise bolhosa, e luta pela vida. O menino sofre com a falta de proteína, de colageno, o que faz com que a derme e apiderme, duas camadas da pele, não se liguem adaquedamente. Por isso, ele tem bolhas e feridas sempre. Na postagem feita nas redes sociais Tayane escreveu: Deus de milagres! #emocionante #emocionantehistoria #doencarar
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A Kamilly enfrenta a Epidermólise Bolhosa todos os dias. Uma doença rara que deixa a pele extremamente frágil e causa dores constantes. Agora, além da luta pela saúde, sua família enfrenta grande dificuldade até para ter comida na mesa. 🍽️💔 Você pode ajudar a mudar essa realidade hoje. Doe alimentos ou qualquer valor e leve esperança para essa guerreira. 📌 PIX: aadora@aadora.org.br
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Pedrinho precisa viajar, mas a cada balanço, sua pele parece rasgar... Ele sofre com Epidermólise Bolhosa, uma doença que faz sua pele ser tão frágil quanto asas de borboleta. A mãe dele passa HORAS trocando curativos, mas os remédios e materiais custam caro demais… Doe pelo link da bio!
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