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Allan é portador de uma doença rara, chamada distrofia muscular de duchenne,já tem uma terapia injetável chamada Elevidys,mas no Brasil só está liberado pra criançaa de 4 a 7 anos,e esse medicamento é 17 milhões de reais.Nos ajude nessa luta.
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Melhor dia como Bryan fala onde ele relaxa os músculos,tratamento de extrema importância para quem tem DMD. continuem compartilhando para nos ajudar a conseguir o Elevidys!! Pix:todosporbryan@gmail.com Qualquer ajuda é bem vinda
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Victor Hugo é uma menino muito carinhoso, forte e corajoso, foi diagnosticado com autismo aos 4 anos e com distrofia muscular de Duchenne aos 10 anos , então desde daí estamos nessa luta diária, e agora estamos aqui tentando salvar o Victor a medicação chamada elevidys só ela pode curar o duchenne. Porém o valor dela é muito alto 16 milhões, eu sei que pra muito é muito difícil de conseguir esse valor. #salveovictorhugo #festivaldemusica #ViciadosEmUmBomDrama #frasesdedeus
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