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Dia que fui Diagnóstica com a má formação de nascença no cérebro Chiari tipo 1 e sirigomelia 🥺
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E no fim é só eu, que guardo tudo pra mim e demonstro o mínimo para os outros. Ter uma doença #rara como a #sindromedearnoldchiari é impossível de acertar e tentar conviver com ela é tão desesperador, ainda mas quando você não tem dinheiro e nem assistência necessária para lidar com a #chiarimalformation é triste, desesperador, são tantas dores diferentes que parece que é o fim, mas sei que Deus tem me ajudado nessa caminhada só queria que fosse mais leve...
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fui diagnósticda com chiari tipo 1 e venho pedir ajuda oque eu poça conseguir ir fazer a cirurgia eu conto com a Judá de todos vocês que poder ajudar nessa luta e que Deus abençoe 🙏
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Síndrome de Arnold chiari tipo um. Doença desgenerativa e progressiva. Além de crises convulsivas,seringomielia e outros que o avanço da doença trouxe.
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Cargando
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